Awesome Social Media Follows...
Sometimes we simply want to feel understood by someone else, and these social media personalities do just that. We are sharing these to help everyone feel a little less alone and to share information about various invisible illnesses to make the information more readily available and help others be diagnosed!
The Dysautonomia Community Instagram account shares many videos, information about different aspects of and comorbidities of dysautonomia, and has a shop with some fun items!
Nicole Marie Pedra has so many videos that just make us say "Yes! I totally relate!" Chronic illness, including MS, and so much humor and relatability are her messaging.
As the name implies, this society focuses on Ehlers-Danlos Syndrome and the many comorbidities that can be associated with EDS. The society inspires to increase CARE - Care, Access, Research, and Education.
Instagram * TikTok * YouTube
Allison shares many of the conditions that impact her life, frustrations with not getting diagnosis in a timely manner, and general support for others also going through life with disabilities.
This amazing service dog shows off skills that helps alert and care for an owner with invisible illness. The care and attention to detail is amazing and shows that we truly don't deserve the awesomeness of dogs!
Coming Soon
Looking forward to sharing more accounts soon!
There are so many wonderful social media accounts sharing information about invisible illness! We aim to consistently add new profiles here to increase the awareness of a variety of conditions and supports.
Instagram * YouTube *
Dr. Melissa Koehl is a physical therapist and Pilates instructor who concentrates on hypermobility and comorbidities, and lives with hEDS herself. We love health providers who truly understand us!
Erin Nance, MD is an awesome support for people who are misdiagnosed and underdiagnosed. Reels include information on some of the most common missed diagnoses and gaslit conditions.
Coming Soon
Looking forward to sharing more accounts soon!
There are so many wonderful social media accounts sharing information about invisible illness! We aim to consistently add new profiles here to increase the awareness of a variety of conditions and supports.
Do you share social media about Invisible Illness?
Reach out to Gut, Heart, Soul to be considered for addition to this list!